Funding For Down Syndrome, Or Lack Thereof

There is a major lack of funding for research benefiting people with Down syndrome, even compared to other conditions and diseases. Funding for Ds at the National Institute of Health (NIH) started a continual and precipitous decline in the year 2001. In that year, funding for Ds research was $29 million out of a $20.5 billion budget, or 0.0014% of the overall budget. From that point, funding went into free-fall with cuts for several consecutive years, in some years the largest cuts for any condition in the U.S. It reached a low in 2006 with funding of $14 million in a budget of $28.5 billion. While the dollar amount has risen in recent years, it still sits around 0.0007% of the overall budget. As a result, Down syndrome is the least-funded major genetic condition in the U.S. Without research funding, best practices for classroom education can’t be studied nor tools created for teachers and parents. Without funding, there can be no centralized patient registry, database or biobank system that can help people with Ds who want to participate in clinical trials or education studies.

The information above is from the Global Down Syndrome Foundation.

October is Down syndrome awareness month. This month I am participating in a blog challenge for Down syndrome awareness. Click the link below to see a list of more blogs posting for Down syndrome awareness during the month of October…


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