What I Want You To Be Aware Of During Down Syndrome Awareness Month

October is Down syndrome awareness month. It is a month to spread awareness and acceptance of Down syndrome while at the same time celebrating it. Here is what I personally would like you to be aware of regarding Down syndrome… I’d appreciate it if you used people first language. It’s simple. All you need to do … More What I Want You To Be Aware Of During Down Syndrome Awareness Month

NY Buddy Walk

Wow. I feel like it’s been forever since I last updated this blog, but we were busy doing lots of fun things this summer. Maybe I’ll do a separate post on that later, but we ended our summer in a great way with the National Down Syndrome Society Buddy Walk in New York City last weekend. … More NY Buddy Walk

Tips For Surviving a Down Syndrome Pregnancy

For all of the parents out there that are anxiously awaiting the birth of their baby with Down syndrome, I know how you feel because I’ve been there. I know the emotional roller coaster that you are riding. I know how you hate the unknown. There is such a wide range of abilities and health issues with individuals with … More Tips For Surviving a Down Syndrome Pregnancy

Heart Update

Heart defects are not uncommon with Down Syndrome. According to the CDC, around 50% of children with Down Syndrome have heart defects. That’s a scary percentage. Flip a coin and your child will either have it or they won’t. Having a child with Down syndrome is one thing but add a heart defect and that … More Heart Update