Gigi Turns 2!

​Today we are celebrating Gigi. She turns two and it’s exciting to me. I’m a little sad that my baby is getting older, but I feel like there is a lot to celebrate. From the moment she was born it has been an amazing two years. We feel blessed that Gigi has thrived and is … More Gigi Turns 2!

What Makes Me Smile

Gigi has Down syndrome. With Down syndrome often comes low muscle tone. Because of this, at the age of almost two she still isn’t walking or crawling yet. This doesn’t mean that Gigi hasn’t been mobile. She’s been moving around since before she turned one by scooting around on her bottom. Most days of the … More What Makes Me Smile

What I Want You To Be Aware Of During Down Syndrome Awareness Month

October is Down syndrome awareness month. It is a month to spread awareness and acceptance of Down syndrome while at the same time celebrating it. Here is what I personally would like you to be aware of regarding Down syndrome… I’d appreciate it if you used people first language. It’s simple. All you need to do … More What I Want You To Be Aware Of During Down Syndrome Awareness Month

NY Buddy Walk

Wow. I feel like it’s been forever since I last updated this blog, but we were busy doing lots of fun things this summer. Maybe I’ll do a separate post on that later, but we ended our summer in a great way with the National Down Syndrome Society Buddy Walk in New York City last weekend. … More NY Buddy Walk

Tips For Surviving a Down Syndrome Pregnancy

For all of the parents out there that are anxiously awaiting the birth of their baby with Down syndrome, I know how you feel because I’ve been there. I know the emotional roller coaster that you are riding. I know how you hate the unknown. There is such a wide range of abilities and health issues with individuals with … More Tips For Surviving a Down Syndrome Pregnancy

Heart Update

Heart defects are not uncommon with Down Syndrome. According to the CDC, around 50% of children with Down Syndrome have heart defects. That’s a scary percentage. Flip a coin and your child will either have it or they won’t. Having a child with Down syndrome is one thing but add a heart defect and that … More Heart Update