Heart Update

Heart defects are not uncommon with Down Syndrome. According to the CDC, around 50% of children with Down Syndrome have heart defects. That’s a scary percentage. Flip a coin and your child will either have it or they won’t. Having a child with Down syndrome is one thing but add a heart defect and that … More Heart Update

Sleep Study

Gigi had a sleep study last night. Dr. Skotko once told us that every child with Down syndrome gets an automatic pass to a sleep study since apnea is common in individuals with Down syndrome. I just didn’t think it would happen this early, but since Gigi’s oxygen saturations dipped so low during sleep while … More Sleep Study

Us Against the Germs

I’m happy it’s February already. We survived January, somewhat. And we survived the end of 2015. When I say survived I’m speaking of colds, flu, germs. The first few months of cold and flu season went great. I even started to get a little relaxed, actually very relaxed. Gigi even spent 3 whole days with … More Us Against the Germs

When Your Baby With Down Syndrome Won’t Stop Breastfeeding

The title of this blog post is something I never expected to experience. In fact, one thing I heard over and over again when I was pregnant was “babies with Down syndrome often have trouble nursing.” I feel like all I heard was that breastfeeding may not be possible due to low muscle tone and … More When Your Baby With Down Syndrome Won’t Stop Breastfeeding