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family life with a twist of Down syndrome

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Contributor of the book “Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives, 10th Anniversary Edition”

Top Posts & Pages

How to Build a Special Needs Care Binder with Free Inserts
Delayed Milestones Hurt, But They Won't Get Us Down
What I Want You To Be Aware Of During Down Syndrome Awareness Month
Preparing for World Down Syndrome Day: Printable Cards and Coloring Sheet
Down Syndrome Inspiration
Seven Annoying Things About Having a Baby With Down Syndrome

#easter #theluckyfew

All ready for the bunny! Big sister is setting the stage and leaving bunny's notes and footprints for Gigi. #downrightperfect #easter #theluckyfew #thisis4

My kids are right at home at the zoo. #downrightperfect #downsyndrome #trisomy21 #nothingdownaboutit #morealikethandifferent #theluckyfew #zoo #bronxzoo

The face of a girl who knows she just started spring break. #downrightperfect #downsyndrome #trisomy21 #nothingdownaboutit #upsyndrome #theluckyfew #springbreak #friday

Walking herself into school and finding her classroom. I can leave her at the building's door. Such a big girl! #downrightperfect #downsyndrome #trisomy21 #nothingdownaboutit #upsyndrome #theluckyfew #morealikethandifferent #lifeisbetterwithyou #thisis4 #preschool

Lia's hockey season that began in the beginning of September finally ended tonight with a championship win in her house league playing with all boys. But more importantly, she met a great group of girls on her girls team with dedicated parents and coaches whose friendly faces made it easier to make it to those Saturday 730am games. So proud of her progress this year. #girlshockey #womenshockey #parkwayhawks #parkwayhockey

World Down Syndrome Day is March 21st and I've been wanting to write a post to help spread awareness as the day intends but for weeks I've been wracking my brain and can't find anything to say. I realized that I can't find anything to say because our life with a 4-year-old with Down Syndrome it's not as unusual as one might think. It's typically boring most of the time. I have a 4-year-old who walks, (runs actually), speaks to me and lets me know what she needs, goes to school, has friends, gets invited to birthday parties, enjoys playing with dolls, likes playing pretend in her play kitchen, likes to color, I can go on and on. This is all the typical 4-year-old pastimes. She also likes to not listen at times, prefers cake over healthier dinner food, tells me that she's not ready to go to bed when I tell her it's time, and likes to climb into mom and dad's bed in the middle of the night. Typical 4-year-old shenanigans. She can count to 20 (most of the time), knows all of her letters upper and lower case, and can even recite the sounds for most. Typical 4-year-old knowledge. She still struggles with some things like dressing herself and holding a crayon but you can say that it's typical for a 4-year-old to not be able to do it all. Her friends with Down Syndrome are pretty much the same. While some may be struggling in some areas like verbal communication they may be advancing tremendously in others such as in jumping or climbing. So there's really nothing super unusual about this; nothing to write home about. Yes, there are some things that I'm tired of, such as changing diapers and carrying a 35lb child who might walk a little bit too slow for my own patience during our below-freezing days. It again is nothing to write home about. We're just living our normal lives. When we speak about children with Down syndrome compared to those without, we say that those children without Ds are "typical". But reflecting on our normal, it's not too unusual if you ask me. I'd say we're more typical than you'd think. #downrightperfect #downsyndromelove #downsyndromeawareness #downsyndrome #theluckyfew #nothingdownaboutit #upsyndrome #wdsd #wdsd2019

#snowday #boston #morealikethandifferent #theluckyfew #nothingdownaboutit #upsyndrome #downsyndromeawareness #downrightperfect #downsyndrome #trisomy21 #snowman #sisters

Finally! She fits in her sisters' princess dresses. 🏰 #nothingdownaboutit #upsyndrome #theluckyfew #lifeisbetterwithyou #morealikethandifferent #cinderella #downsyndrome #thisis4

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three with a twist

family life with a twist of Down syndrome

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