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family life with a twist of Down syndrome

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Read Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives

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Taking a Chance on Having a Third Child and Getting a Gift of Down Syndrome

Day 20 - Just a few decades ago it was common practice to place children with Down syndrome in institutions. #trisomy21 #nothingdownaboutit #upsyndrome #theluckyfew #lifeisbetterwithyou #lifewithds #t21 #morealikethandifferent #downsyndromelove #dsam #dsam2018 #justanextrachromosome

Day 19 - many people with Down syndrome go to college. At first when Gigi was a baby and I didn't know much about Down syndrome I figured she wouldn't go past high school and at least I wouldn't have to pay for a 3rd college education (assuming her sisters go to college). But now it looks like I might need to save money for her too! #trisomy21 #nothingdownaboutit #upsyndrome #theluckyfew #lifeisbetterwithyou #lifewithds #t21 #morealikethandifferent #downsyndromelove #dsam #dsam2018 #justanextrachromosome

Day 18 - Kids with Down syndrome are more likely to recover from some health issues, like leukemia, than typical kids. #trisomy21 #nothingdownaboutit #upsyndrome #theluckyfew #lifeisbetterwithyou #lifewithds #t21 #morealikethandifferent #downsyndromelove #dsam #dsam2018 #justanextrachromosome

Day 17 - Providing people with Down syndrome an education has been a law since the 1970's. #downsyndrome #trisomy21 #nothingdownaboutit #upsyndrome #theluckyfew #lifeisbetterwithyou #lifewithds #t21 #morealikethandifferent #downsyndromelove #dsam #dsam2018 #justanextrachromosome

Day 16 - Over the next 20 years there will be an increase in the Down syndrome population. #downsyndromeawareness #downsyndrome #trisomy21 #nothingdownaboutit #upsyndrome #theluckyfew #lifeisbetterwithyou #lifewithds #t21 #morealikethandifferent #downsyndromelove #dsam #dsam2018 #justanextrachromosome

Day 15 - 38% of American's know someone with Down syndrome. #downsyndromeawareness #downsyndrome #trisomy21 #nothingdownaboutit #upsyndrome #theluckyfew #lifeisbetterwithyou #lifewithds #t21 #morealikethandifferent #downsyndromelove #dsam #dsam2018 #justanextrachromosome

Day 14 - the termination rate is high for Down syndrome pregnancies. Much of it is due to the misinformation that expectant mothers receive when they are diagnosed. #downsyndromeawareness #downsyndrome #trisomy21 #nothingdownaboutit #upsyndrome #theluckyfew #lifeisbetterwithyou #lifewithds #t21 #morealikethandifferent #downsyndromelove #dsam #dsam2018 #truth #justanextrachromosome

My husband and I had been riding the parenting train for 7 years and we were finally seeing that light at the end of the tunnel. The girls were becoming more independent. Then we started seriously thinking, should we have a third child? Do we risk it? Why take the chance, our life was perfect. I hesitantly convinced myself that I shouldn't let any anxiety get the best of my life’s journey. Little did I know. We decided to roll the dice and grow our family. Party of 4 just didn't feel complete. And I had a dream only a year prior. It was fuzzy and I couldn't see faces but I was watching my children playing, and there were 3 of them. And to the littlest one I said, "I'm so glad I had you." I got pregnant and due to my age it was advised that I take some blood tests. Only 4 days later on a Thursday night came the call regarding those dice that I rolled. The baby had Trisomy 21. Little was said between the genetic counselor on the phone and me. She rattled off a bunch of clichés about how kids with Down syndrome were very loving and always happy. Somehow that positivity comforted me but it was fleeting. I had only months left until life as we knew it would be tragically veered off course to a new life of health issues and missed opportunities for all of us. I ruined my family's perfect life. I took a risk and I lost. Those thoughts of devastation were due to my lack of knowledge. I spent my pregnancy researching and speaking with experienced parents. I soon saw the truth about Down syndrome, which wasn't as devastating as I thought. Yes, it was going to be hard. However, I learned where I can get support and that things would be okay because things were going well for other families who felt that they were blessed to have Down syndrome in their lives. Sometimes they refer to themselves as the lucky few. I began to feel like I won the lottery. That's how I feel about having 3 girls, 1 with Ds. She adds uniqueness to our family. She teaches us what's really important in life; not ability or success but joy and happiness. We wouldn't have it any other way. The baby has Down syndrome. I enhanced my family's life. I took a risk and I won and I'm so glad I had her.

Day 12 - please don't use the word "retarded". Even the term mental retardation in medical terms is considered inappropriate nowadays. Only yesterday Carina said to me that two of her classmates said the word "retarded" in conversation. I asked her if she told them it was inappropriate to use and she said the conversation had quickly moved on so she didn't get a chance. I hope that next time it happens she does use it as an opportunity to teach. These two kids probably don't even realize that it's not a nice word. Our children that know not to use the word need to educate their friends that it's inappropriate to say. #downsyndromeawareness #downsyndrome #trisomy21 #nothingdownaboutit #upsyndrome #theluckyfew #lifeisbetterwithyou #lifewithds #t21 #morealikethandifferent #downsyndromelove #thisis3 #3yearsold #justanextrachromosome #rword

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three with a twist

family life with a twist of Down syndrome

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