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family life with a twist of Down syndrome

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Contributor of the book “Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives, 10th Anniversary Edition”

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Resources
Down Syndrome Facts
Down Syndrome Inspiration
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The Physical Characteristics of Down Syndrome
Preparing for World Down Syndrome Day: Printable Cards and Coloring Sheet

#epcot #imagination #monorail

#favoritepark #theluckyfew #nothingdownaboutit #morealikethandifferent #trisomy21 #epcot #waltdisneyworld #worldshowcase

Gigi was so happy to meet Daisy #waltdisneyworld #disneysanimalkingdom #tuskerhouse #daisy #downrightperfect #downsyndrome #theluckyfew #nothingdownaboutit #upsyndrome

Routine bloodwork at our visit to the Down syndrome clinic means like 8 vials of blood and lots of crying but we signed and blinged out her "cast" so she's happy now. #downrightperfect #downsyndrome #trisomy21 #nothingdownaboutit #morealikethandifferent #theluckyfew #trisomy21

Being sassy and getting her hair done before dressing in some adorable outfits! Gigi had a photoshoot yesterday for Matilda Jane. She was very cooperative and listened to directions. Hoping she gave the photographers and directors good smiles. If so you may be seeing her dressed very cute for fall. But most importantly I'm thrilled that Matilda Jane uses models with different abilities. #downrightperfect #morealikethandifferent #downsyndrome #trisomy21 #nothingdownaboutit #theluckyfew #childmodel #downsyndromemodel #ctfob

These girls spent this afternoon at the State House meeting our local state Representative to advocate for individuals with Down syndrome. #advocacy #Act4HigherEd #mdsc #downrightperfect #downsyndrome #trisomy21 #nothingdownaboutit #theluckyfew

"By Caweena". Big sister is off to a 3 night trip to Maine with her class. #classtrip

I didn't take this photo, Carina's Coach did, but we had a beautiful night of softball. #softball #sunset #boston #parkwaygirlssoftball #pgsl #softballseason #softballplayers #softballlife #usasoftball

I'm so proud of this girl. Parent teacher conferences were this week and Gigi is rocking preschool. She is in an inclusive class with mostly typical peers. She's still one of the only kids that knows all of her letters and numbers and now most of the sounds that go with them. It's time to start working on reading phonetically! Socially she's doing great and has friends that seek out time to spend with her despite the fact that she tends to be quiet. She raises her hand to participate and behaviorally the only issue is she can be a little fidgety. I'm am so blessed to have this little lovey in my life who continually teaches me to never underestimate. 💙💛 #thisis4 #preschool #theluckyfew #morealikethandifferent #downsyndrome #trisomy21 #downsyndromeawareness #upsyndrome #nothingdownaboutit #inclusion #inclusiveclassroom

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three with a twist

family life with a twist of Down syndrome

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