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family life with a twist of Down syndrome

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Contributor of the book “Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives, 10th Anniversary Edition”

Top Posts & Pages

Down Syndrome Facts
Individuals With Down Syndrome Can Get a Free Pass to National Parks
How to Build a Special Needs Care Binder with Free Inserts
Tips For Surviving a Down Syndrome Pregnancy
What I Want You To Be Aware Of During Down Syndrome Awareness Month
Preparing for World Down Syndrome Day: Printable Cards and Coloring Sheet

Last month we adopted this bonded pair of kitten siblings (Chip and Joy) and they have been an amazing addition to our family. They are the best kitties! #kittens

Down Syndrome Awareness Month (Day 25) - A survey conducted through Harvard found:

Down Syndrome Awareness Month (Day 22) - In 1960, on average, persons with Down syndrome lived to be about 10 years old. In 2007, on average, persons with Down syndrome lived to be about 47 years old. Thanks to advancements in medicine, today it's about 60 years. #dsam2021 #downsyndromeawareness #trisomy21 #lifewithds

Down Syndrome Awareness Month (Day 21) - Kids with Down syndrome often have difficulty expressing their feelings and preferences. This can put them in a difficult situation. Two days ago Gigi came off the bus with her hair completely down and free of the 2 hair bands we put in her hair everyday. The bus monitor handed me the hair ties when Gigi got off the bus. 🤷‍♀️🙄 When I asked Gigi what happened to her hair she said that Daniel took the hair bands out. I'm sure she didn't want this to happen as the bands are in good and tight and usually need to be carefully taken out. "Did you want your hair bands taken out, Gigi?" She said she didn't and when I asked her if she told Daniel to stop she said she did not. It makes me sad to think that she gets into situations where she can't defend herself, stand up for herself, or express what she wants as easily as most 6 year olds. I told her that next time something happens to her that she doesn't like to say "no" and "stop" really loud. We practiced that evening. Yesterday she came off the bus this time with her hair only partially undone. She tells me, "Daniel touched my hair again". I asked her what she did when he did that and she said she told him to stop. Good job, Gigi. ❤ #trisomy21 #dsam2021 #downsyndrome #downsyndromeawareness

Down Syndrome Awareness Month (Day 20) - the terms "mild Down syndrome" or "severe Down syndrome" are not accurate. You either have it or you don't and it is determined by a diagnostic blood test. However, every individual with Down syndrome is different and has their own different abilities and talents. #downsyndromeawareness #dsam2021 #thisis6 #matildajane

Down Syndrome Awareness Month (Day 19) - “The experience and knowledge gained by having a sibling with Down syndrome also seems to make children more accepting and appreciative of differences. They tend to be more aware of the difficulties others might be going through, and often surprise parents and others with their wisdom, insight and empathy.”

Down Syndrome Awareness Month (Day 18) - Piggy backing off yesterday's post about individuals with Ds having a right to a free education, an inclusive setting is ideal for children with Down syndrome. In this environment, they learn from their typical peers and in turn, neuro-typical children learn patience, compassion, and about diversity when in a classroom with children with disabilities. Here is Gigi with her bestie on an apple-picking field trip. #downsyndromeawareness #dsam2021 #trisomy21 #inclusionworks #inclusionmatters #thisis6 #lifewithds

Down Syndrome Awareness Month (Day 17) - It has only been since the 1970's that it became a law that children with developmental disabilities were provided public education. The Education of All Handicapped Children Act (PL 94-142) was passed which requires free, appropriate public education in the least restrictive setting to children with developmental disabilities. This Act is later renamed The Individuals With Disabilities Education Act (IDEA).

Down Syndrome Awareness Month (Day 16) - Gigi does not 'suffer' from Down syndrome.

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Last month we adopted this bonded pair of kitten siblings (Chip and Joy) and they have been an amazing addition to our family. They are the best kitties! #kittens

Down Syndrome Awareness Month (Day 25) - A survey conducted through Harvard found:

Down Syndrome Awareness Month (Day 22) - In 1960, on average, persons with Down syndrome lived to be about 10 years old. In 2007, on average, persons with Down syndrome lived to be about 47 years old. Thanks to advancements in medicine, today it's about 60 years. #dsam2021 #downsyndromeawareness #trisomy21 #lifewithds

Down Syndrome Awareness Month (Day 21) - Kids with Down syndrome often have difficulty expressing their feelings and preferences. This can put them in a difficult situation. Two days ago Gigi came off the bus with her hair completely down and free of the 2 hair bands we put in her hair everyday. The bus monitor handed me the hair ties when Gigi got off the bus. 🤷‍♀️🙄 When I asked Gigi what happened to her hair she said that Daniel took the hair bands out. I'm sure she didn't want this to happen as the bands are in good and tight and usually need to be carefully taken out. "Did you want your hair bands taken out, Gigi?" She said she didn't and when I asked her if she told Daniel to stop she said she did not. It makes me sad to think that she gets into situations where she can't defend herself, stand up for herself, or express what she wants as easily as most 6 year olds. I told her that next time something happens to her that she doesn't like to say "no" and "stop" really loud. We practiced that evening. Yesterday she came off the bus this time with her hair only partially undone. She tells me, "Daniel touched my hair again". I asked her what she did when he did that and she said she told him to stop. Good job, Gigi. ❤ #trisomy21 #dsam2021 #downsyndrome #downsyndromeawareness

Down Syndrome Awareness Month (Day 20) - the terms "mild Down syndrome" or "severe Down syndrome" are not accurate. You either have it or you don't and it is determined by a diagnostic blood test. However, every individual with Down syndrome is different and has their own different abilities and talents. #downsyndromeawareness #dsam2021 #thisis6 #matildajane

Down Syndrome Awareness Month (Day 19) - “The experience and knowledge gained by having a sibling with Down syndrome also seems to make children more accepting and appreciative of differences. They tend to be more aware of the difficulties others might be going through, and often surprise parents and others with their wisdom, insight and empathy.”

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family life with a twist of Down syndrome

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