The Physical Characteristics of Down Syndrome

Getting back to education on Down syndrome, today I will blog about the physical features of Down syndrome. Tomorrow I will write about the cognitive impacts and then following day I’ll write about the health impacts. A little series for you! Down syndrome can cause some pretty distinct physical characteristics. Most of us, whether we … More The Physical Characteristics of Down Syndrome

Finding Support Online

I’ve met many parents of children with Down Syndrome over the past year, mostly all via the internet. This is where I’ve found most of my support. I’ve met moms through discussion groups on babycenter.com where there are new moms like me as well as many experienced parents who have been very valuable in telling me they’ve “been there, … More Finding Support Online

5 Things That Happen To Your Facebook Social Life After Having a Baby With Down Syndrome

1. Your feed will be taken over by everything Down syndrome. Assuming you signed up for Down syndrome related groups, you will see plenty of posts on Down syndrome – babies with Down syndrome, kids with Down syndrome, babies recovering from open heart surgery. It can get overwhelming. 2. You will get random requests to … More 5 Things That Happen To Your Facebook Social Life After Having a Baby With Down Syndrome

How a Stranger Changed My Thoughts About Down Syndrome

One beautiful Sunday at the local farmers market an eccentric-looking woman standing a safe distance away from me looked at my belly and said, “It’s a girl, isn’t it?”. I was six months pregnant. “Yes, it is,” I replied. Then with a perplexed look and a furrowed brow she said, “I can tell. I can … More How a Stranger Changed My Thoughts About Down Syndrome

Our Local Community

Today we got what I felt like we missed last week when we didn’t meet anyone at the Buddy Walk. Today we attended our local playgroup for children with Down syndrome that we had only been able to attend a few other times. When I say local, I mean within the state, which means some people come from … More Our Local Community

To The Experienced Parent of a Child With Down Syndrome

Ever since I found out I was having a baby with Down syndrome, over a year ago, I’m surprised at how infrequently I see a child with Down syndrome out and about. It is a very rare occurrence, and we are out quite a bit, at lots of family places – playgrounds, restaurants, theme parks, tourist attractions not … More To The Experienced Parent of a Child With Down Syndrome

Our First Buddy Walk

Yesterday was the Buddy Walk in Wakefield, Massachusetts. It was a beautiful day, close to 70, so perfect for a walk around the lake. It was a great day for Gigi, joined by her parents, sisters, one of her grandmothers, and my cousin, Melissa, and her husband. This was our first big Down syndrome event. Being a … More Our First Buddy Walk