When Your Baby With Down Syndrome Won’t Stop Breastfeeding

The title of this blog post is something I never expected to experience. In fact, one thing I heard over and over again when I was pregnant was “babies with Down syndrome often have trouble nursing.” I feel like all I heard was that breastfeeding may not be possible due to low muscle tone and … More When Your Baby With Down Syndrome Won’t Stop Breastfeeding

Don’t Be Sorry

When I was pregnant with Gigi I told some people that the baby I was expecting has Down syndrome, but I didn’t tell everyone. I wasn’t keeping a secret, and I wasn’t embarrassed or ashamed, I just didn’t feel like dealing with the negativity because most of the time the response would be, “Oh no”, … More Don’t Be Sorry

Rosa’s Law and The R Word

Here is something I didn’t know. On October 5, 2010, President Barack Obama signed legislation requiring the federal government to replace the term “mental retardation” with “intellectual disability” in many areas of government. The measure is known as Rosa’s Law, named after Rosa Marcellino, a Maryland girl with Down syndrome. Under the law, “mental retardation” and “mentally retarded” … More Rosa’s Law and The R Word

To The Grieving Grandparents Who Just Received a Down Syndrome Diagnosis, This Is Not The Down Syndrome You Know

To the grieving Grandparents who just received a Down syndrome diagnosis for their grandchild. It is understandable that you are grieving as it is not uncommon, and unfortunately sometimes you are forgotten. Your grieving is probably twofold as you are heartbroken for both your grandchild and your child. This is not something you wanted for either one … More To The Grieving Grandparents Who Just Received a Down Syndrome Diagnosis, This Is Not The Down Syndrome You Know

A Rare Siting

This morning at Mass I had a rare siting. If you happened to read my previous post from a few weeks ago, To The Experienced Parent of a Child With Down Syndrome, you may remember that I mentioned that I hardly ever see any people with Down syndrome in my day to day life and … More A Rare Siting