Don’t Be Sorry

When I was pregnant with Gigi I told some people that the baby I was expecting has Down syndrome, but I didn’t tell everyone. I wasn’t keeping a secret, and I wasn’t embarrassed or ashamed, I just didn’t feel like dealing with the negativity because most of the time the response would be, “Oh no”, … More Don’t Be Sorry

Rosa’s Law and The R Word

Here is something I didn’t know. On October 5, 2010, President Barack Obama signed legislation requiring the federal government to replace the term “mental retardation” with “intellectual disability” in many areas of government. The measure is known as Rosa’s Law, named after Rosa Marcellino, a Maryland girl with Down syndrome. Under the law, “mental retardation” and “mentally retarded” … More Rosa’s Law and The R Word

To The Grieving Grandparents Who Just Received a Down Syndrome Diagnosis, This Is Not The Down Syndrome You Know

To the grieving Grandparents who just received a Down syndrome diagnosis for their grandchild. It is understandable that you are grieving as it is not uncommon, and unfortunately sometimes you are forgotten. Your grieving is probably twofold as you are heartbroken for both your grandchild and your child. This is not something you wanted for either one … More To The Grieving Grandparents Who Just Received a Down Syndrome Diagnosis, This Is Not The Down Syndrome You Know

She’ll Never Be Smart: Cognitive Impairment And Down Syndrome

That’s just a fact and something I’ll have to get used to. I’m only familiar with smart; my husband is smart and my two other girls are smart. When I found out that my baby had Down syndrome, I was worried about the health issues that come along with it. Friends had other perspectives. They said, … More She’ll Never Be Smart: Cognitive Impairment And Down Syndrome

The Physical Characteristics of Down Syndrome

Getting back to education on Down syndrome, today I will blog about the physical features of Down syndrome. Tomorrow I will write about the cognitive impacts and then following day I’ll write about the health impacts. A little series for you! Down syndrome can cause some pretty distinct physical characteristics. Most of us, whether we … More The Physical Characteristics of Down Syndrome

Finding Support Online

I’ve met many parents of children with Down Syndrome over the past year, mostly all via the internet. This is where I’ve found most of my support. I’ve met moms through discussion groups on babycenter.com where there are new moms like me as well as many experienced parents who have been very valuable in telling me they’ve “been there, … More Finding Support Online

5 Things That Happen To Your Facebook Social Life After Having a Baby With Down Syndrome

1. Your feed will be taken over by everything Down syndrome. Assuming you signed up for Down syndrome related groups, you will see plenty of posts on Down syndrome – babies with Down syndrome, kids with Down syndrome, babies recovering from open heart surgery. It can get overwhelming. 2. You will get random requests to … More 5 Things That Happen To Your Facebook Social Life After Having a Baby With Down Syndrome

How a Stranger Changed My Thoughts About Down Syndrome

One beautiful Sunday at the local farmers market an eccentric-looking woman standing a safe distance away from me looked at my belly and said, “It’s a girl, isn’t it?”. I was six months pregnant. “Yes, it is,” I replied. Then with a perplexed look and a furrowed brow she said, “I can tell. I can … More How a Stranger Changed My Thoughts About Down Syndrome