Heart defects are not uncommon with Down Syndrome. According to the CDC, around 50% of children with Down Syndrome have heart defects. That’s a scary percentage. Flip a coin and your child will either have it or they won’t. Having a child with Down syndrome is one thing but add a heart defect and that … More Heart Update

Gigi is 7 months already!  Where has the time gone?  She is doing great and we all love her to pieces.  Lately she has been Rolling over Eating solids (and getting constipated) Giving kisses Not taking a bottle (this is stressful) Displaying her stranger anxiety Working hard on sitting independently (she gets PT every other … More Seven Month Update and Cardiologist Visit

Last week Gigi had her follow up echocardiogram at Mass General.  The echocardiogram that she had the day after she was born showed that she had a PDA and a PFO (basically two small holes that typically close up on their own).  Dr. Skotko recommended we follow up with another echo, so we had that last … More A Visit With the Cardiologist