Down syndrome awareness month is coming to an end and I can’t believe I actually managed to blog daily. This felt like a long month. I’m glad I was able to spread a little awareness, but I won’t let it end here just because the month is over. I will let the daily blogging end though! … More Why I Advocate For Down Syndrome
Approaching Gigi’s one year birthday, this is how I feel: Sad – that the newborn phase is long gone and the baby phase is going by so quickly. Thankful – for a wonderful year; better than I ever could have imagined. Excited – to see Gigi grow and succeed. I know that age 1 is going to be … More Approaching the First Birthday
When I was pregnant with Gigi I told some people that the baby I was expecting has Down syndrome, but I didn’t tell everyone. I wasn’t keeping a secret, and I wasn’t embarrassed or ashamed, I just didn’t feel like dealing with the negativity because most of the time the response would be, “Oh no”, … More Don’t Be Sorry
I wanted to write tonight about a term that has come up a lot in both conversations among other moms of children with Down syndrome as well as in how people have described Gigi. The term is “a mild case of Down syndrome”. Apparently this rubs some people the wrong way and most say that … More A Mild Case of Down Syndrome
Here is something I didn’t know. On October 5, 2010, President Barack Obama signed legislation requiring the federal government to replace the term “mental retardation” with “intellectual disability” in many areas of government. The measure is known as Rosa’s Law, named after Rosa Marcellino, a Maryland girl with Down syndrome. Under the law, “mental retardation” and “mentally retarded” … More Rosa’s Law and The R Word
To the grieving Grandparents who just received a Down syndrome diagnosis for their grandchild. It is understandable that you are grieving as it is not uncommon, and unfortunately sometimes you are forgotten. Your grieving is probably twofold as you are heartbroken for both your grandchild and your child. This is not something you wanted for either one … More To The Grieving Grandparents Who Just Received a Down Syndrome Diagnosis, This Is Not The Down Syndrome You Know
This morning at Mass I had a rare siting. If you happened to read my previous post from a few weeks ago, To The Experienced Parent of a Child With Down Syndrome, you may remember that I mentioned that I hardly ever see any people with Down syndrome in my day to day life and … More A Rare Siting
When I first found out that Gigi was going to be born with Down syndrome, I immediately focused on and worried about the health conditions associated with it. I am a worrier when it comes to health, so this is where I dwelled. Here are the health conditions that are most commonly associated with Down … More Health Conditions Associated With Down Syndrome
That’s just a fact and something I’ll have to get used to. I’m only familiar with smart; my husband is smart and my two other girls are smart. When I found out that my baby had Down syndrome, I was worried about the health issues that come along with it. Friends had other perspectives. They said, … More She’ll Never Be Smart: Cognitive Impairment And Down Syndrome
Today is our 10 year wedding anniversary. The evening was very different from the rowdy, Bronx, Italian food fest we had 10 years ago. This is how it went down… Brendan came home from work a little early and we wanted to do something to celebrate but weren’t sure if we should all go out to … More Celebrating 10 Years of Marriage
three with a twist 