What I’m Celebrating on World Down Syndrome Day

World Down Syndrome Day is celebrated every year on March 21st, or 3/21. Fitting because an individual is diagnosed with Down Syndrome when they have three copies (instead of the typical two copies) of the 21st chromosome. Down Syndrome International recognizes the day as one to “help raise awareness of what Down syndrome is, what … More What I’m Celebrating on World Down Syndrome Day

Dear Doctor

Dear Doctor, I wanted to write you about my experience with my prenatal diagnosis of Down syndrome. Although the initial diagnosis was delivered by our genetic counselor on a Thursday evening, you took over from there immediately. I’d have to say, you did everything right. You called me the next morning to tell me that … More Dear Doctor

Gigi Turns 2!

​Today we are celebrating Gigi. She turns two and it’s exciting to me. I’m a little sad that my baby is getting older, but I feel like there is a lot to celebrate. From the moment she was born it has been an amazing two years. We feel blessed that Gigi has thrived and is … More Gigi Turns 2!

What Makes Me Smile

Gigi has Down syndrome. With Down syndrome often comes low muscle tone. Because of this, at the age of almost two she still isn’t walking or crawling yet. This doesn’t mean that Gigi hasn’t been mobile. She’s been moving around since before she turned one by scooting around on her bottom. Most days of the … More What Makes Me Smile

What I Want You To Be Aware Of During Down Syndrome Awareness Month

October is Down syndrome awareness month. It is a month to spread awareness and acceptance of Down syndrome while at the same time celebrating it. Here is what I personally would like you to be aware of regarding Down syndrome… I’d appreciate it if you used people first language. It’s simple. All you need to do … More What I Want You To Be Aware Of During Down Syndrome Awareness Month

NY Buddy Walk

Wow. I feel like it’s been forever since I last updated this blog, but we were busy doing lots of fun things this summer. Maybe I’ll do a separate post on that later, but we ended our summer in a great way with the National Down Syndrome Society Buddy Walk in New York City last weekend. … More NY Buddy Walk